100 Changemakers for 100 days of BFRB Awareness
Professor Clare Mackay: Advancing BFRB Research to Make Change
article written by Samu G. and ChatGPT
At BFRB Changemakers, we are honored to highlight the incredible work of Professor Clare E. Mackay (@thetrichprof), a distinguished researcher and passionate advocate for the Trichotillomania community. Professor Mackay recently made headlines with her groundbreaking perspective piece published in the British Medical Journal: Mental Health, titled "Trichotillomania: a perspective synthesized from neuroscience and lived experience." This publication is not just a significant academic contribution; it is a beacon of hope for those affected by Body-Focused Repetitive Behaviors (BFRBs).
A Unique Perspective: Science Meets Lived Experience
Professor Mackay's journey with trichotillomania spans over four decades, giving her a profound understanding of the condition from both personal and scientific viewpoints. As a Professor of Imaging Neuroscience in the Department of Psychiatry at the University of Oxford, she uniquely bridges the gap between lived experience and cutting-edge research. Her ability to weave together scientific insights with personal narratives makes her work deeply impactful and accessible to both the academic community and the general public.
Key Insights from Professor Mackay's Research
One of the most compelling aspects of Professor Mackay's work is her re-conceptualization of BFRBs. Traditionally, these behaviors have been lumped together with disorders like anxiety or OCD. However, Professor Mackay offers a fresh perspective, suggesting that BFRBs may actually be a fundamental motor response to emotional or psychological distress. She posits that these behaviors become "overlearned" motor responses, deeply ingrained in the brain's motor system, and often bypass conscious thought, leading to a self-perpetuating cycle.
In her paper, Professor Mackay also explores the idea that behaviors like picking, pulling, or biting, while common to everyone, become problematic when they spiral out of control. She draws a fascinating parallel between human BFRBs and grooming behaviors observed in animals. In captivity, excessive self-grooming in animals is often a sign of distress, hinting at an evolutionary link to our own behaviors.
Another crucial aspect of her research is the identification of shame as a destructive force in the cycle of BFRBs. Shame, compounded by societal stigma, creates a feedback loop that exacerbates distress and intensifies the urge to engage in these behaviors. Professor Mackay argues that addressing shame directly is essential for managing BFRB urges. She highlights two powerful antidotes: connection and self-compassion.
The Power of Connection and Self-Compassion
Professor Mackay emphasizes the importance of community support in breaking the cycle of isolation that often accompanies BFRBs. Organizations like BFRB Changemakers and HabitAware play a crucial role in fostering a sense of belonging and providing a safe space for individuals to connect with others who share similar experiences.
Equally important is the practice of self-compassion. Professor Mackay encourages those struggling with BFRBs to be kind to themselves, recognizing that healing often begins with self-understanding and empathy.
Beyond BFRB Advocacy: Professor Mackay's Broader Contributions
While Professor Mackay's recent work on trichotillomania is groundbreaking, it is just one facet of her illustrious career. Holding a BSc and PhD from the University of Liverpool, she is a leading expert in imaging neuroscience, with a focus on understanding the early stages of neurodegenerative diseases like Alzheimer’s and Parkinson’s. As the Associate Director & Head of Translation at the Oxford Centre for Human Brain Activity (OHBA) and Co-Theme Lead for Dementia at the NIHR Oxford Health Biomedical Research Centre, Professor Mackay is at the forefront of research aimed at identifying risk factors and developing interventions for these conditions.
Her leadership of the Translational Neuroimaging Group underscores her commitment to uncovering how genetic and environmental factors influence brain structure and function long before symptoms of neurodegenerative diseases appear. Through the Oxford Brain Health Clinic, she seamlessly integrates research and clinical care, providing innovative assessments and treatments.
Looking Ahead: Professor Mackay's Ongoing Impact
Professor Clare Mackay’s work continues to inspire and pave the way for a deeper understanding of BFRBs and neurodegenerative diseases. Her commitment to advocacy and research is a testament to her dedication to improving the lives of those affected by these conditions. We at BFRB Changemakers are incredibly grateful for her contributions and look forward to supporting her ongoing efforts.
Professor Clare Mackay is not just a researcher; she is a changemaker, and we are proud to stand alongside her efforts to raise awareness and understanding of BFRBs.
